Cystic Fibrosis Basics

If you are an individual that likes the why and how of something, tune in. The next series of blog posts are to help everyone understand what Maddox has, how it impacts him and what the future looks like right now. Don’t worry, I have a ton of Maddox pictures to help break up the…

May is CF Awareness Month

The month of May is CF Awareness Month! Throughout the month, I will have a few posts to refresh the basics of what CF is, walk through the future of CF and understand where 65 roses came from. Don’t forget that May 18th is the Great Strides walk in Appleton where money raised will go…

A Day in Madison

Madison, the capital of WI. The city were all the individuals in state legislative positions come together to sit and discuss so many things that will effect our lives from state taxes, health care, tuition costs and so much more. And then there is me. A mom of a 3 year old CF’er ready to…

Oh the places you will go!

A week of sunshine, 80 degrees, beaches, and memories. We all survived our first week long family vacation. After Maddox’s surgery and all the stress of it, Nick and I decided that we needed to get away and get some real Vitamin D. Our vacation was booked to Florida for the first full week of…

Quarterly Check Up

It’s that time again, another doctor appointment. Just when we thought we were good/caught up with everything, Billie called and stated that we were due for our quarterly CF check up. In the beginning of the conversation, she stated that we really didn’t need the visit since we were just in the office, but I…

Recovery

Blog post 3 of 3 I think it’s safe to say that Maddox is pretty close to back to normal but not without his recovery time. When we left the hospital, he was actually doing really good but keep in mind that he was on the pain meds from surgery. As he came out of…

Surgery Day

Blog Post 2 of 3 Maddox’s surgery was scheduled for a Tuesday morning. The night before, we ate a hearty meal and all crashed on the couch. Eventually, we all went into our own beds for a day to be filled with a ton of emotions. That morning Nick and I were up, packed and…

The Prep Work

Blog post 1 of 3. In following up from my update from our quarterly CF appointment and our consultations our surgery date was scheduled. It was about a month in between the consultations and the surgery date. Who knew there would be so much that could be crammed into that time frame. First thing I…

Surviving the Polar Vortex

Well, we survived (granted its still -11 while I am typing this post) but I feel like that’s nothing compared to the -20 with the dangerous wind chills that we had earlier in the week. We are expecting to be in the high 30s this coming weekend. I had a mommy moment on Tuesday night…

Teaching Life Lessons

Today on my Facebook newsfeed I saw a post that caught my eye, a plea from a mommy asking for help finding a lost stuffed animal or helping find a replacement for her little one. My heart went out immediately as I know how devastated Maddox would be if he ever lost Blue Bear. But…