Chores

If you want children to keep their feet on the ground, put some responsibility on their shoulders. – Abigail Van Buren During my summers growing up, we had a chore list. It was a yellow pad of lined paper that sat on the kitchen table that you read as soon as we got up. The…

Summer Bucket List

The summer of 2019 has proven to be fun and busy! Our spring started off cold and rainy with the sun and warmth eventually making an appearance. But just as fast that Summer arrived, I fear that is has gone back into hibernation. The weeks that were nice and warm, we crammed as much as…

My Adventure Seeker

Ok – let me tell you a story. One of the adventures we did this summer was head to EAA to watch the day and night air show and Maddox was so intrigued about the Parachute teams. All he wanted to see, all he wanted to talk about, all he asked about – everything about…

Update from the CF World

Knowledge is power. Information is liberating. Education is the premise of progress, in every society, in every family – Kofi Annan Hey Everyone – just wanted to pass on a few updates of where the CF world is as far as advancements, trials, etc. While we were at the Quarterly check up a few weeks…

Quarterly Check Up

Today is good day to have a good day. It’s about that time again for our quarterly check up with Maddox’s CF team. Today is a bit difference as Nick and I are celebrating our 10 year anniversary. 10 years ago it was probably the hottest day of the year, rained in the morning, great…

What can you do to help?

Small acts, when multiplied by millions of people, can transform the world- Howard Zinn. I was asked to provide insight into how can our community members can get involved to help CF. My questions back to everyone are; where is your passion, what are your strengths, or what do you like to do that brings…

Mental Health Stigma

I’m not gonna lie, the month of May has definitely been a roller coaster of emotions, stress, fun, weather, and everything in between. I had all the best intentions to have more posts of CF and everything that is going on, where we are, CF advocacy and everything in between. And then my appendix decided…

Parent – Teacher Conferences

Yep! You read that right! Our little man had Parent Teacher conferences this week. Nick’s first thought is what are they going to chat about? He’s 3. Well, we were pleasantly surprised on how much we could talk about. It was pretty cool to see how much he has grown and what we can work…

CF is Gaining Momentum

It’s amazing that in just 3.5 years ago, I really didn’t know anything about CF. I heard of it in passing, couldn’t pronounce the name and didn’t know anyone with it. Now, when something is handed to you as a challenge, you jump in all hands on deck to learn everything about it. Now that…

The Story of 65 Roses

As I was surfing on the CF Foundation page for information to share with everyone, I came across this story which I thought was really interesting. Enjoy! The “65 Roses” story dates back to 1965 when an observant 4-year-old, hearing the name of his disease for the first time, pronounced cystic fibrosis as “65 Roses.”…