The Fear of Tests

Its a Thursday afternoon, Nick and I are calling each other as we are walking out the office door and heading to daycare. We meet in the daycare parking lot, buckle up and we are on our way to St Vincent hospital for our quarterly CF Check in.  All day yesterday, we were talking with…

Don’t Blink

Time Flies when you’re having fun. Don’t blink and they will be driving and moving to college. You’ll look at each other and wonder where the time went. There will be a time you’ll look at your child and they are growing up so fast, cherish the moments. We’ve all heard these before, right. Until…

Practice Makes Perfect

Ok, blow out the candles and make a wish! Here is a pinwheel, blow on it to make it go. Here is a red balloon, try to blow it up! Hey we just found arm floaties for the pool, see how full you can get them. Maddox, do you remember the yellow balloons from Packer…

Its all in the numbers..

I feel that we are living our lives according to numbers. Numbers generally are not always bad and they are not always good. It depends on how you look at the numbers. My professor in my MBA stats class cringed at our response to his question, “What happens if the numbers don’t come out as…

Celebrating a Milestone

Happy Birthday Dear Maddox, Happy Birthday to you! How old are you Maddox? “Free” he answers with the biggest smile on his face as he struggles to hold up three fingers on his little hand! The memories that he may or may not remember when he gets older, but don’t worry – mom has plenty…

The Evolution of Birthday Parties

When Nick and I were growing up, birthday parties were the biggest thing to look forward to; going to a friends house, having cake, playing games, watching them open gifts and get a goodie bag full of gifts and we went home. Nowadays, these parties are quickly becoming a thing of the past, or so…

The beginning of our story…

In June, I made a connection with the CF Foundation asking about a story on their blog looking to see if I could share a story on Team Maddoxs blog. We got to chatting and they asked if I would be interested in writing a blog post for the national CF Foundation blog. Fast forward…

I miss being a kid, even if its a scraped knee

The playful giggles, a ball in his hand, a smile on his face as he runs to your open arms. You swoop him up into a big bear hug, smoother in kisses, then he’s back on the ground to continue to run. Until he takes a digger. Then your heart breaks, the tears shed and…

CFF Advocacy Journey has begun

Elected officials; the individuals that spend a ton of money on their campaign to tell us all their big dreams and ambitions to make life better for us on our behalf. Their name is on a ballot, a sheet of paper, that is handed to us during our 30 seconds we take to vote on…

It started off so good too..

Every 6 months, Maddox and I make the trip to the chair. The chair that everyone knows they need to sit in and have anxiety before they get there. Well, at least I do. It’s not my favorite place as there are other places in the world I would rather be, just not the dentist…