Weeks 8 -13

The weeks 8 to 13 definitely started to wear on us as a family as we were missing our family and friends. We missed having a sense of normal and we started to adventure out of our house a bit more as the weeks moved on. Maddox and I went to a local hardware store…

Welcome to Week 7 – Covid 19

Welcome to week 7 where everything is made up and the points don’t matter. Ha! This is about how I feel right now. We haven’t completely lost touch with the outer world but we are getting pretty close. I haven’t stepped a foot into Target since March 13th! (But the delivery drivers know us by…

Our Life in Social/Physical Distancing

And here I sit on our couch as Maddox is playing on his iPad doing his vest treatment with Daddy. A part of our normal routine that still carries on. The vest has been with us through the Polar Vortex, thunderstorms, Christmas Eve at Grandpa’s house, birthday parties and now we can add the Covid-19…

Quarterly CF Update

As soon as the wheels landed back in Appleton from March on the Hill, we turned around and had our quarterly CF check up in Green Bay. This appointment had a very different tune as this time the CF team was asking me questions from what I heard and learned at the conference. As always,…

14th Annual March on the Hill

The last week of February, I was able to march on Capitol hill with 200 other advocates to tell the story of Cystic Fibrosis to our state’s elected officials in Washington D.C. Here I’ll tell the story of how everything went as it was a jammed packed two days of a roller coaster of emotions,…

Team Maddox Update

Greetings Team Maddox Followers! This post will have a different twist as it’s a wrap up of 2019 and what 2020 has in store. As of January 2, 2020 we have 278 Facebook followers and had 30 blog posts in 2019. We are international (Hola Roberto!) and we have fans/followers all across the US from…

December CF Appointment

Now that the holidays are over, it’s time to catch up on the rest of December. In one of the latest posts, I mentioned that we had his December CF appointment lined up and that we did the blood draw and chest xray at his pediatric doctor office. Then came the day that we went…

Keeping Active

One of the things we are trying really hard with Maddox is to keep him as active as he can. Its part of the studies, the more CFers keep working out and keeping the blood pumping, the better their lung function is. With that being said, we enrolled into Flag Football and so started our…

Taking a Moment to Catch Up

“It is impossible for me to remember how many days or weeks went by in this way. Time is round, and it rolls quickly.”  Nikos Kazantzakis It’s that time again for our quarterly CF doctor appointment. I logged onto my blog tonight and noticed that the last blog I had on here was our last…

Quarterly Check up & More

It’s that time again, our quarterly check up with the CF team in Green Bay. It’s also that time again for our well child check up and a trip to the dentist. When I’m looking at the calendar scheduling all our appointments, I always think to myself – perfect try to knock out as much…