Catching Up

It’s amazing how fast time flies. Here is the most recent blog post to catch everyone up on our recent events.

Closing out 2020 and Welcoming 2021

As I was driving home from work today, I got to thinking ‘I am due for a blog post’. I logged in and noticed I had barely updates during 2020 and it pretty much followed our quarterly CF appointments. Its not that I didn’t want to write anything, it got the point of what do…

End of the Year CF Check Up

And just like that, here we are for another quarterly CF check up. This is just nuts of how time is flying that it’s hard to stay up on things. When the pandemic started and we had our stay at home orders, I was mentally thinking to myself; I’m going to read more books, keep…

Quarterly CF Check Up

Today was our first quarterly CF check up and our first doctor appointment since our “Stay at Home” orders were given in March. A week before our appointment, Billie called and asked us the typical questions (any fevers, any pending COVID tests, been near anyone that has it, etc.) Then the day before she called…

Weeks 8 -13

The weeks 8 to 13 definitely started to wear on us as a family as we were missing our family and friends. We missed having a sense of normal and we started to adventure out of our house a bit more as the weeks moved on. Maddox and I went to a local hardware store…

Welcome to Week 7 – Covid 19

Welcome to week 7 where everything is made up and the points don’t matter. Ha! This is about how I feel right now. We haven’t completely lost touch with the outer world but we are getting pretty close. I haven’t stepped a foot into Target since March 13th! (But the delivery drivers know us by…

Our Life in Social/Physical Distancing

And here I sit on our couch as Maddox is playing on his iPad doing his vest treatment with Daddy. A part of our normal routine that still carries on. The vest has been with us through the Polar Vortex, thunderstorms, Christmas Eve at Grandpa’s house, birthday parties and now we can add the Covid-19…

Quarterly CF Update

As soon as the wheels landed back in Appleton from March on the Hill, we turned around and had our quarterly CF check up in Green Bay. This appointment had a very different tune as this time the CF team was asking me questions from what I heard and learned at the conference. As always,…

14th Annual March on the Hill

The last week of February, I was able to march on Capitol hill with 200 other advocates to tell the story of Cystic Fibrosis to our state’s elected officials in Washington D.C. Here I’ll tell the story of how everything went as it was a jammed packed two days of a roller coaster of emotions,…