It’s Time for a New Adventure

Happy Birthday to you, Happy Birthday to you, Happy Birthday dear Maddox, Happy Birthday to you. A milestone birthday we have been waiting for since… you were born, to be honest! Not when you turn 16 and get your driver’s license, not when you turn 21 and can’t remember the night and not when you…

Don’t feel sorry for us, Help Us.

Recently I found myself telling Maddox’s CF story to a complete stranger. Don’t ask me how our story came around to talking about Maddox as he wasn’t with me but he’s always on my mind. As I was talking with this person, we got to talking about summer and a few of the things we…

3 Month CF Check Up

This visit has a little bit more excitement and a whole bunch of extra nerves when we walked into St. Vincent’s hospital this time. Last time we were at the clinic we were just waiting and hopeful for the news for Trikafta to be approved for Maddox’s age group, 6-11. The excitement started when I…

Celebrating CF at the Ball Park

Just recently Team Maddox was at the local baseball venue to celebrate community awareness for Cystic Fibrosis. This year, we were the spot light organization on Ladies Night and we are already booked again for next year!! We handed out pinwheels, beads, glow sticks and straws to over 200 people at the stadium. Each straw…

Catching Up

It’s amazing how fast time flies. Here is the most recent blog post to catch everyone up on our recent events.

Closing out 2020 and Welcoming 2021

As I was driving home from work today, I got to thinking ‘I am due for a blog post’. I logged in and noticed I had barely updates during 2020 and it pretty much followed our quarterly CF appointments. Its not that I didn’t want to write anything, it got the point of what do…

End of the Year CF Check Up

And just like that, here we are for another quarterly CF check up. This is just nuts of how time is flying that it’s hard to stay up on things. When the pandemic started and we had our stay at home orders, I was mentally thinking to myself; I’m going to read more books, keep…

Quarterly CF Check Up

Today was our first quarterly CF check up and our first doctor appointment since our “Stay at Home” orders were given in March. A week before our appointment, Billie called and asked us the typical questions (any fevers, any pending COVID tests, been near anyone that has it, etc.) Then the day before she called…

Weeks 8 -13

The weeks 8 to 13 definitely started to wear on us as a family as we were missing our family and friends. We missed having a sense of normal and we started to adventure out of our house a bit more as the weeks moved on. Maddox and I went to a local hardware store…