As I was surfing on the CF Foundation page for information to share with everyone, I came across this story which I thought was really interesting. Enjoy!
The “65 Roses” story dates back to 1965 when an observant 4-year-old, hearing the name of his disease for the first time, pronounced cystic fibrosis as “65 Roses.” Today, “65 Roses” is a term often used by young children with cystic fibrosis to pronounce the name of their disease.
The Weiss brothers, Richard, 5; Arthur, 7; and Anthony, 16 months.
Mary G. Weiss became a volunteer for the Cystic Fibrosis Foundation in 1965 after learning that her three little boys had CF. Her duty was to call every civic club, social, and service organization, seeking financial support for CF research. Mary’s 4-year-old son, Richard (Ricky), listened closely to his mother as she made each call.
After several calls, Richard came into the room and told his mom, “I know what you are working for.” Mary was dumbstruck because Richard did not know what she was doing, nor did he know that he had cystic fibrosis.
With some trepidation, Mary asked, “What am I working for, Ricky?” He answered, “You are working for 65 Roses.” Mary was speechless.
He could not see the tears running down Mary’s cheeks as she stammered, “Yes Ricky, I’m working for 65 Roses.”
Since 1965, the term “65 Roses” has been used by children of all ages to describe their disease. But, making it easier to say does not make CF any easier to live with.
65 Roses® is a registered trademark of the Cystic Fibrosis Foundation.