Our Story Begins

Our little peanut, Maddox, was diagnosed with CF when he was 5 days old.

We tackle every day with renewed sense of positive energy when we see him smile and giggle at us. We are thankful that we were able to work his CF team right away to learn about it and to give him the tools he needs to grow up big and strong.

Next Steps

Last week, we had our consultation appointments in Green Bay. A quick drive up to Prevea and we are back into doctor offices, answering questions, reviewing medical history, height, weight and paperwork. Remember, these are the follow up appointments from our last CF appointment that we need to have a consultation with the ENT and…

Quarterly CF Check Up

Ugh! I dread this appointment; the week before this appointment I am just a ball of nerves as I know what this appointment means. It means tears, pain, needles, and ick. We get the call from Billie that we need to confirm the appointment and it’s a knot in my throat, but there was a…

Merry Christmas from Team Maddox

In November, Nick and I were invited to a meet and greet in Green Bay. The event was arranged by Lola from the state CF office. She emailed and stated that she wanted to get CF parents in the Fox Valley together so we can share stories and get to know one another as a…

Mommy and Me Time

One of the unofficial holidays of Wisconsin, (but it might well as be)Gun Hunting season.  The weekend before Thanksgiving,  the hunters head to their cabins, campers, or houses and set up their deer camp.  Early Saturday morning, blaze orange is put on, the guns are loaded and the hunters head out to their stands and…

Team work makes the Dream Work

In high school, I played sports; basketball, volleyball and ran on relay teams in Track. After high school, I continued to play in volleyball and joined softball teams. When volunteering with Special Olympics, I was part of the Games Management Team. The underlying theme was that you needed to work together in order to achieve…

Time to Unplug and Recharge the Batteries

Fortunately/unfortunately summer is over. The days are getting shorter, the air is colder, and leaves are turning colors from green to yellow, red, brown and orange. Football season is in full swing and the retail stores are jumping holiday sales. The hustle and bustle of the Summer of 2018 is becoming a memory as we…

The Fear of Tests

Its a Thursday afternoon, Nick and I are calling each other as we are walking out the office door and heading to daycare. We meet in the daycare parking lot, buckle up and we are on our way to St Vincent hospital for our quarterly CF Check in.  All day yesterday, we were talking with…

Don’t Blink

Time Flies when you’re having fun. Don’t blink and they will be driving and moving to college. You’ll look at each other and wonder where the time went. There will be a time you’ll look at your child and they are growing up so fast, cherish the moments. We’ve all heard these before, right. Until…

Practice Makes Perfect

Ok, blow out the candles and make a wish! Here is a pinwheel, blow on it to make it go. Here is a red balloon, try to blow it up! Hey we just found arm floaties for the pool, see how full you can get them. Maddox, do you remember the yellow balloons from Packer…