Our Story Begins

Our little peanut, Maddox, was diagnosed with CF when he was 5 days old.

We tackle every day with renewed sense of positive energy when we see him smile and giggle at us. We are thankful that we were able to work his CF team right away to learn about it and to give him the tools he needs to grow up big and strong.

Recovery

Blog post 3 of 3 I think it’s safe to say that Maddox is pretty close to back to normal but not without his recovery time. When we left the hospital, he was actually doing really good but keep in mind that he was on the pain meds from surgery. As he came out of…

Surgery Day

Blog Post 2 of 3 Maddox’s surgery was scheduled for a Tuesday morning. The night before, we ate a hearty meal and all crashed on the couch. Eventually, we all went into our own beds for a day to be filled with a ton of emotions. That morning Nick and I were up, packed and…

The Prep Work

Blog post 1 of 3. In following up from my update from our quarterly CF appointment and our consultations our surgery date was scheduled. It was about a month in between the consultations and the surgery date. Who knew there would be so much that could be crammed into that time frame. First thing I…

Surviving the Polar Vortex

Well, we survived (granted its still -11 while I am typing this post) but I feel like that’s nothing compared to the -20 with the dangerous wind chills that we had earlier in the week. We are expecting to be in the high 30s this coming weekend. I had a mommy moment on Tuesday night…

Teaching Life Lessons

Today on my Facebook newsfeed I saw a post that caught my eye, a plea from a mommy asking for help finding a lost stuffed animal or helping find a replacement for her little one. My heart went out immediately as I know how devastated Maddox would be if he ever lost Blue Bear. But…

Next Steps

Last week, we had our consultation appointments in Green Bay. A quick drive up to Prevea and we are back into doctor offices, answering questions, reviewing medical history, height, weight and paperwork. Remember, these are the follow up appointments from our last CF appointment that we need to have a consultation with the ENT and…

Quarterly CF Check Up

Ugh! I dread this appointment; the week before this appointment I am just a ball of nerves as I know what this appointment means. It means tears, pain, needles, and ick. We get the call from Billie that we need to confirm the appointment and it’s a knot in my throat, but there was a…

Merry Christmas from Team Maddox

In November, Nick and I were invited to a meet and greet in Green Bay. The event was arranged by Lola from the state CF office. She emailed and stated that she wanted to get CF parents in the Fox Valley together so we can share stories and get to know one another as a…

Mommy and Me Time

One of the unofficial holidays of Wisconsin, (but it might well as be)Gun Hunting season.  The weekend before Thanksgiving,  the hunters head to their cabins, campers, or houses and set up their deer camp.  Early Saturday morning, blaze orange is put on, the guns are loaded and the hunters head out to their stands and…