Our Story Begins

Our little peanut, Maddox, was diagnosed with CF when he was 5 days old.

We tackle every day with renewed sense of positive energy when we see him smile and giggle at us. We are thankful that we were able to work his CF team right away to learn about it and to give him the tools he needs to grow up big and strong.

CF Awareness Events

As mentioned in one of my earlier posts, we discussed of all the different CF Awareness events we had planned for the summer. We started the busy chaos off with Charlie’s Drive-In in Hortonville. We had a chance to meet with Carl and Rachel and we discussed different options during their Elvis days in August….

My Super Hero

One of the days during summer, my Facebook news feed suddenly blew up with something I was tagged in, “Tiny SuperHeroes”. I didn’t know anything about it, I had never heard of it and to be honest I didn’t even get a chance to research it. A few days later, I get a message from…

The End of a Chapter

How lucky I am to have something that make saying goodbye so hard – Winnie the Pooh The end of August was a true whirlwind of events in our house hold. One of the big ones that we had to face was transitioning Maddox’s daycare. When Maddox was born, we lived in our old house…

Chores

If you want children to keep their feet on the ground, put some responsibility on their shoulders. – Abigail Van Buren During my summers growing up, we had a chore list. It was a yellow pad of lined paper that sat on the kitchen table that you read as soon as we got up. The…

Summer Bucket List

The summer of 2019 has proven to be fun and busy! Our spring started off cold and rainy with the sun and warmth eventually making an appearance. But just as fast that Summer arrived, I fear that is has gone back into hibernation. The weeks that were nice and warm, we crammed as much as…

My Adventure Seeker

Ok – let me tell you a story. One of the adventures we did this summer was head to EAA to watch the day and night air show and Maddox was so intrigued about the Parachute teams. All he wanted to see, all he wanted to talk about, all he asked about – everything about…

Update from the CF World

Knowledge is power. Information is liberating. Education is the premise of progress, in every society, in every family – Kofi Annan Hey Everyone – just wanted to pass on a few updates of where the CF world is as far as advancements, trials, etc. While we were at the Quarterly check up a few weeks…

Quarterly Check Up

Today is good day to have a good day. It’s about that time again for our quarterly check up with Maddox’s CF team. Today is a bit difference as Nick and I are celebrating our 10 year anniversary. 10 years ago it was probably the hottest day of the year, rained in the morning, great…

What can you do to help?

Small acts, when multiplied by millions of people, can transform the world- Howard Zinn. I was asked to provide insight into how can our community members can get involved to help CF. My questions back to everyone are; where is your passion, what are your strengths, or what do you like to do that brings…

Mental Health Stigma

I’m not gonna lie, the month of May has definitely been a roller coaster of emotions, stress, fun, weather, and everything in between. I had all the best intentions to have more posts of CF and everything that is going on, where we are, CF advocacy and everything in between. And then my appendix decided…