Our Story Begins

Our little peanut, Maddox, was diagnosed with CF when he was 5 days old.

We tackle every day with renewed sense of positive energy when we see him smile and giggle at us. We are thankful that we were able to work his CF team right away to learn about it and to give him the tools he needs to grow up big and strong.

Quarterly CF Update

As soon as the wheels landed back in Appleton from March on the Hill, we turned around and had our quarterly CF check up in Green Bay. This appointment had a very different tune as this time the CF team was asking me questions from what I heard and learned at the conference. As always,…

14th Annual March on the Hill

The last week of February, I was able to march on Capitol hill with 200 other advocates to tell the story of Cystic Fibrosis to our state’s elected officials in Washington D.C. Here I’ll tell the story of how everything went as it was a jammed packed two days of a roller coaster of emotions,…

Team Maddox Update

Greetings Team Maddox Followers! This post will have a different twist as it’s a wrap up of 2019 and what 2020 has in store. As of January 2, 2020 we have 278 Facebook followers and had 30 blog posts in 2019. We are international (Hola Roberto!) and we have fans/followers all across the US from…

December CF Appointment

Now that the holidays are over, it’s time to catch up on the rest of December. In one of the latest posts, I mentioned that we had his December CF appointment lined up and that we did the blood draw and chest xray at his pediatric doctor office. Then came the day that we went…

Keeping Active

One of the things we are trying really hard with Maddox is to keep him as active as he can. Its part of the studies, the more CFers keep working out and keeping the blood pumping, the better their lung function is. With that being said, we enrolled into Flag Football and so started our…

Taking a Moment to Catch Up

“It is impossible for me to remember how many days or weeks went by in this way. Time is round, and it rolls quickly.”  Nikos Kazantzakis It’s that time again for our quarterly CF doctor appointment. I logged onto my blog tonight and noticed that the last blog I had on here was our last…

Quarterly Check up & More

It’s that time again, our quarterly check up with the CF team in Green Bay. It’s also that time again for our well child check up and a trip to the dentist. When I’m looking at the calendar scheduling all our appointments, I always think to myself – perfect try to knock out as much…

CF Awareness Events

As mentioned in one of my earlier posts, we discussed of all the different CF Awareness events we had planned for the summer. We started the busy chaos off with Charlie’s Drive-In in Hortonville. We had a chance to meet with Carl and Rachel and we discussed different options during their Elvis days in August….

My Super Hero

One of the days during summer, my Facebook news feed suddenly blew up with something I was tagged in, “Tiny SuperHeroes”. I didn’t know anything about it, I had never heard of it and to be honest I didn’t even get a chance to research it. A few days later, I get a message from…

The End of a Chapter

How lucky I am to have something that make saying goodbye so hard – Winnie the Pooh The end of August was a true whirlwind of events in our house hold. One of the big ones that we had to face was transitioning Maddox’s daycare. When Maddox was born, we lived in our old house…