Our Story Begins

Our little peanut, Maddox, was diagnosed with CF when he was 5 days old.

We tackle every day with renewed sense of positive energy when we see him smile and giggle at us. We are thankful that we were able to work his CF team right away to learn about it and to give him the tools he needs to grow up big and strong.

What a Milestone

If you are reading this, you are reading our 101th post on the Team Maddox Blog. Congratulations that you have stuck with us throughout our CF journey so far. I didn’t even realize we had 100 posts until I got a message from my blog site that stated congratulations. Oh – that’s pretty cool. The…

Health is not valued until sickness comes

“Mom, I don’t feel good.” The dreaded words that make every parent’s heart ache for their kiddos. And then there is me. Broken hearted every time he says these words and I know his healing and recovery will be twice as long as kiddos his age. A CF’er already has the struggles of feeling like…

2022 CF Awareness Events

November – the days are shorter, the weather generally turns colder and it’s a great time to reflect on all the things we are thankful for. The year 2022 brought opportunities for CF community awareness events throughout the calendar year and it was so much fun. As I have shared, lung function is vital. Maddox…

As the Season Turns

Fall – not my favorite season. Personally, I am allergic to everything growing right now and will be in allergy hide out until the first frost. The days are quickly getting shorter and colder, my flip flops are traded in for boots, my tank tops turn in to sweatshirts and the tan that I had…

1 Trip around the Sun

365 days = 1 trip around the Sun. We can officially say that Maddox has been on Trikafta for 1 lap around the sun. What is Trikafta? TRIKAFTA┬áis a prescription medicine used for the treatment of cystic fibrosis (CF) in patients aged 6 years and older who have at least one copy of the F508del…

Most Recent CF Appointment

There was a point in my life that I absolutely hated going to the hospital and doctor’s offices. The really bright lights, everyone in scrubs, furniture that was extremely uncomfortable and the sterile smell of all the cleaning chemicals. I still don’t look forward to parking in the parking lot of the hospitals and the…

Welcome Dr Laura to the Medical Team

In May when we were at our CF appointment, Dr Pete and I had a pretty deep conversation as Maddox is very little for his age. He’s really short and skinny and never in a good place on the growth charts. The weight gain has always been an issue from Day 1 as CF’ers have…

Blank Page – Life’s Canvas of Possibility

A blank page -it’s what I am looking at right now as I am trying to sort all the events that have happened over the last few months in an effort to share everything. Nick stated I should have bullet points and see what happens from there. With how much my brain is swirling on…

Understanding the Moments

The bad news is time flies. The good news is you’re the pilot – Michael Altshuler Here we are, the first week of May in 2022. This is just crazy of how time is flying by. One of my goals for 2022 was to find myself and through this exercise so far, my passion for…

March on the Hill

March 17 – Team WI, along with 160 other advocates from around the United States attended March on the Hill for Cystic Fibrosis. The event this year was held virtually with the Senators and Congressional Representative throughout the day. During this event, we were scheduled 4 different meetings for elected officials for all of Wisconsin….